Our Food Allergy Research
Kids with Food Allergies (KFA), along with its parent organization the Asthma and Allergy Foundation of America (AAFA), conducts many research projects to better understand the needs of people living with food allergies. We research awareness, knowledge, preferences, and behaviors related to managing food allergies and preventing allergic reactions.
KFA and AAFA conduct and are involved in various food allergy research projects to help improve quality of life, reduce the burden of food allergies, and bring the patient voice to research. Our research also helps advocacy efforts for the food allergy community. Learn more about our food allergy research projects below.
Anaphylaxis in America™
AAFA’s Anaphylaxis in America™ study looked at patient, public, and doctor attitudes and behaviors about anaphylaxis. The study was based on public and patient surveys. This study includes an article, “Anaphylaxis in America: The Prevalence and Characteristics of Anaphylaxis in the United States,” and a letter to the editor, “Anaphylaxis in America: A National Physician Survey.” Both of these were printed in the “Journal of Allergy and Clinical Immunology.”
Food Allergy Anaphylaxis in Infants and Toddlers
AAFA and KFA partnered with leading food allergy researchers to better understand how parents (and primary caregivers) of young children recognize the signs of allergic reactions in infants and toddlers. Results from this study have now published in the “Journal of Allergy and Clinical Immunology: In Practice.”
My Life With Food Allergy: Parent Survey Report
AAFA and KFA conducted a three-part food allergy study to understand the burden of food allergy from three populations: parents of children with food allergies, teen/young adult patients with food allergies, and adults with food allergies.
Patient-Focused Drug Development (PFDD)
The FDA created the PFDD initiative to collect patient insights on specific diseases, including their impact on daily life and treatment options. PFDD meetings are designed to connect patients and caregivers directly with the FDA, as well as researchers and drug developers. Some PFDD meetings are led by the FDA and others are externally-led by patient advocacy organizations. The meetings and resulting Voice of the Patient reports help the FDA see what is important to patients. This includes what people want treatment to look like (apart from a cure). AAFA collaborated with other patient organizations on a PFDD meeting on food allergies.
Patients play a bigger and more critical role in research now. KFA and AAFA work to engage patients in the research process. You can have a stronger voice in research, which will lead to improved treatments based on what is important to you.
Sign up and let us know you want to be part of food allergy research!